So, although I haven't blogged here in ages (!) I am still totally amped for CRPS Retreat. The thought of meeting a group of people who know what it feels like to live this way, is so exciting that I literally cannot find the words to explain it. People all the time use the cliche of being "lost for words" or there's "no words that could describe this", but in this case, it's true. I CAN'T find any words to explain how excited I am, proven by the fact that every time I try, it doesn't come out half as passionate as I was hoping for!
I begin University tomorrow, and I'm so nervous. Not the normal kind of "butterflies in the tummy" sort of nervousness. This is full on panic attack, being eaten alive by carnivorous butterflies, while my lungs shrink to nothing. I have a point in this though. My point is that CRPS Retreat is keeping me breathing. The thought of finally meeting you, Kaylee, meeting all of you, is what is repeating in my head, making me pack my bag, make my lunch. Unfortunately, the New Zealand School of Music is NOT disability friendly. More like anti-disability. Ok, that's a little extreme, but the physical landscaping and design of the University is not making it very easy for me to move around Campus. I refuse to let CRPS take one more thing away from me, but my increase of pain simply from O Week is what is worrying me. How am I to cope with one week, let alone a trimester?
Anyway, I should probably stop rambling about unrelated nonsense here. I hope you are all doing well, and that the thought of our event is helping you through whatever you may be facing, CRPS related, or not. Know that I love you and am so appreciative of all the support you have shown Kaylee and me. Love to you!
Sunday, February 28, 2010
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